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Discussion Starter · #1 ·
Crappers spent the best part of yesterday in the hospital again and as many times they can't figure out the why's and what triggers my episodes. And then they want to do all sorts of tests on you and that's when I get so frustrated with my body I have had so many CT's x-rays MRI's and in the last less then 3 years have had 1058 needle pokes my hands are scarred from so many blood tests IV's and such only to not know 75% of the time the why's and what's.
Not complaining about my care it has been top notch and the Doctors even are frustrated as they know something is going on but they just can't find out what it was that triggers my episodes of sever pain, yesterday couldn't walk more then 15-20 feet without doubling over while trying to get into emergency fortunate for me a kind gentleman came over to give me a helping hand and when I couldn't walk anymore he went in to get me a chair.
Good golly Miss Molly I would rather have broken a bone at least it is something they could treat or fix, some days I just wish I could find me a brick wall to run my head into and the part I really hate is when the morphine is given and doesn't work along with gravol and then they go to the serious stuff fentynol. That stuff works but it is absolute HELL on the body and I do NOT enjoy the sensation it gives you.
Okay got that off my chest later friends and not friends. ship of fools
 

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"like" given, but take it as a show of support for what you are going through...not literally liking that you are. :)
I agree, often the diagnosis is the hardest part of the experience.
 
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That sounds awful. Have you looked at treatment outside of Canada?

I hope it gets resolved for you.
 

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Man when i read this i get upset. I wish you all the best and hopefully they can pin point it in the very near future. Glad you are getting top notch care.
 

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I can't begin to count the number of times I've heard or read an interview with someone who was dealing with some debilitating health problem, and the turning point for them, psychologically, was having a clear diagnosis. Simply knowing what's wrong - i.e., identifying the thing to be cured or treated, not just the symptoms it produces, and having a name to hang on it - is often the thing that lets someone finally exhale. Walking around with a big question mark over one's head is draining.

I just wish I could say "Get a new guitar. That oughta fix it." It would help you, and persuade a great many here that such purchases are a panacea for many a problem (great rationale to provide one's partner, too!). Sigh, but life's not like that, nor that easy.

Hope they can figure it out, Ship.
 

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So sorry to hear about the episodes of pain. I can't imagine how difficult that is to deal with. Maybe keeping in mind all the things the medical staff have tried so far is at least eliminating those things will help to keep you more positive about the testing. As you can see by all the posts above, you have a listening ear, here.
 

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Our health care system seems somewhat flawed by having only medicine/surgery-based modalities as publicly accepted and funded options. We've had half a dozen friends and family members die in hospitals the last few years under the care of a variety of doctors, surgeons and specialists, many of whom had sterling reputations and credentials for their areas of practice. Most of these patients under the care of these doctors invariably and eventually found themselves on vast quantities of prescription drugs of varying toxicity, had one or more ineffective or questionable surgical procedures and/or other treatment protocols. Pity too, as many of the original conditions appeared to be ones of a nature that would perhaps best respond to treatment options more holistic in nature such as examination of/modifications to diet, lifestyle and exercise, etc if caught early enough.

It seems that people of a certain age tend to put doctor practicing in medicine on a very high pedestal (parents of both wife and I are guilty of this), and don't question their treatment protocols. I can see how these perceptions were formulated and confirmed once upon a time, as I'm old enough to remember our family doctor traveling 5 miles from the nearest small town to do housecalls on us when we were sick as children. It's the 21st century now, however, and there are certain emerging factors coming into play now: changes in lifestyle, diet, etc; "Big pharma" with their professional perks for physicians writing med scrips, pharmaceutical co's funding labs and research (now, if those things don't imply bias, I don't know what does); large corporate interests such as Monsanto etc that've engineered/introduced GMO foods, which comprise the lion's share of the world's food supply. Ironically, GMO foods have been touted by some as the saviour of the planet, but numerous third-party studies suggest otherwise; the list goes on...

In some countries, health care systems reward positive outcomes; unfortunately, this is not the case in N. America. If we could look at those that do and perhaps make modifications to the status quo, perhaps we would see an improvement in outcomes for patients under public healthcare. This is a discussion and consideration that's long past due.

With that, I'll step down from my soapbox...
 

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Discussion Starter · #10 ·
Thanks everyone well I have eliminated almost all scrips from specialists except for a rescue inhaler and synthroid as I must confess that each had great intentions in prescribing them for my aliments but they did not take into account my other conditions as they knew very little about them which is understandable. However when you read the contradictions and reactions between them for the life of me I do not understand why I am still alive.
Turns out I was actually doing more harm to myself then good in many situations.
I get it that medicine is 25% knowledge and 75% this is our best guess/experience and that they are never going to be able to diagnose every thing that is out there and I think we need to ask more questions before taking meds along with our pharmacies need to include much more counter reactions then say the top 3-4.
I wonder just how much my meds have made me even sicker over the years and partly my own fault for relying on them for everything going wrong and them wanting to fix it.
Before I would always research any drugs surgery or procedure before allowing it but after my mini strokes well that became difficult to comprehend at times now having reduced so many meds my IPF/COPD has improved along with other symptoms that the medications gave me bad eyes swelling and tingling and many other little things that I attributed to my diseases some of those have completely disappeared ( please do NOT stop taking your meds because of what I have written ) but do your homework and check all side effects and discuss with your doctor.

And Gtone I do not believe that you can get any foods that are not GMO and more to me its like buying organic pollution knows no borders nor does seeds carried in the wind we have seen it many times where a farmer has gone GMO and his neighbor has tried to go natural only to have their food tested and found to be like their GMO farmer next door or 500 miles away ( stupid wind knows no borders )
As for getting tested somewhere else no thanks if after all these tests by so many specialists from different hospitals I have no more blood to give which reminds me for those that can please take some time and do donate I have had around 10 litres of blood in the last 3 years given to save my life unfortunately for me had Hep C so even though I have had what they call spontaneous remission I still can not donate. oh well thanks again everyone for your support and encouragement I am a fighter and do not give up or in easy. ship
 

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I'm not sure if I'm helping by sharing this, but I've heard testimonies from many people with the same/similar symptoms that no one could diagnose or treat, so they resorted to eating a diet of only plain meat and plain greens and they improved or were cured rapidly.

For the record, I'm NOT into diet fads, but if you're suffering that much, maybe it's something to consider.

I believe it's called the Paleo diet.
 

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I am sorry to hear about your health problems. Part of the reason I am retiring next year is to reduce the stress in my life. It seems that the more I worry, the more often I get sick. I hope you can find out what is causing it soon.
 
G

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Our health care system seems somewhat flawed by having only medicine/surgery-based modalities as publicly accepted and funded options. We've had half a dozen friends and family members die in hospitals the last few years under the care of a variety of doctors, surgeons and specialists, many of whom had sterling reputations and credentials for their areas of practice. Most of these patients under the care of these doctors invariably and eventually found themselves on vast quantities of prescription drugs of varying toxicity, had one or more ineffective or questionable surgical procedures and/or other treatment protocols. Pity too, as many of the original conditions appeared to be ones of a nature that would perhaps best respond to treatment options more holistic in nature such as examination of/modifications to diet, lifestyle and exercise, etc if caught early enough.

It seems that people of a certain age tend to put doctor practicing in medicine on a very high pedestal (parents of both wife and I are guilty of this), and don't question their treatment protocols. I can see how these perceptions were formulated and confirmed once upon a time, as I'm old enough to remember our family doctor traveling 5 miles from the nearest small town to do housecalls on us when we were sick as children. It's the 21st century now, however, and there are certain emerging factors coming into play now: changes in lifestyle, diet, etc; "Big pharma" with their professional perks for physicians writing med scrips, pharmaceutical co's funding labs and research (now, if those things don't imply bias, I don't know what does); large corporate interests such as Monsanto etc that've engineered/introduced GMO foods, which comprise the lion's share of the world's food supply. Ironically, GMO foods have been touted by some as the saviour of the planet, but numerous third-party studies suggest otherwise; the list goes on...

In some countries, health care systems reward positive outcomes; unfortunately, this is not the case in N. America. If we could look at those that do and perhaps make modifications to the status quo, perhaps we would see an improvement in outcomes for patients under public healthcare. This is a discussion and consideration that's long past due.

With that, I'll step down from my soapbox...
Have thought about switching your Synthroid to Desiccated Thyroid? The Synthroid is a synthetic T4, and then your body has to make all the other derivatives from that. (T3, T2 T1 and others). The Desiccated Thyroid is actual pig thyroid and contains all the elements. It is much more natural. -Note: MDs think the Synthetic is better, so getting it can be going against their advice. But it is way better.

Can you give a detailed description of all your symptoms? Maybe someone here has had something similar...
 

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Discussion Starter · #15 ·
No point in pointing out all of my symptoms the worst right now is I have a unfound bleed ( extreme black stool ) so I am bleeding into my tummy along with fibro-myalgia IPF, Post polio and several other things. ( there are others ) The only problem that we have seen with that Player99 is that you do need to do very frequent blood tests to keep it leveled as some food and other medication can interfere with absorption and can increase or decrease the effectiveness of it.
I was just hoping they would/could find my recent cause for the bleeding, if you find it then you can treat it kind of thing. They didn't find where it was bleeding from so they can't fix it.
I have has whats called a capsule endoscopy ( takes video ) and unfortunately they didn't see where along with all of those other fun things they do ( mind you I'm still P Oed that the Dr's never called the next day or sent me flowers or at the very least fed me after the rubber glove treatment damn them right )
At this point it would just be nice to have a few hours of pain relief and the ability to eat a decent meal without chucking. Oh well what can you do but listen to more music and enjoy life. But thanks all for those recommendations. shitty ship
 
G

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No point in pointing out all of my symptoms the worst right now is I have a unfound bleed ( extreme black stool ) so I am bleeding into my tummy along with fibro-myalgia IPF, Post polio and several other things. ( there are others ) The only problem that we have seen with that Player99 is that you do need to do very frequent blood tests to keep it leveled as some food and other medication can interfere with absorption and can increase or decrease the effectiveness of it.
I was just hoping they would/could find my recent cause for the bleeding, if you find it then you can treat it kind of thing. They didn't find where it was bleeding from so they can't fix it.
I have has whats called a capsule endoscopy ( takes video ) and unfortunately they didn't see where along with all of those other fun things they do ( mind you I'm still P Oed that the Dr's never called the next day or sent me flowers or at the very least fed me after the rubber glove treatment damn them right )
At this point it would just be nice to have a few hours of pain relief and the ability to eat a decent meal without chucking. Oh well what can you do but listen to more music and enjoy life. But thanks all for those recommendations. shitty ship
I am sorry you are going through what you are. I wish you a speedy recovery.
 

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Discussion Starter · #19 ·
Well just when I thought it was getting a bit better when and had a small TIA yesterday, wondering when the big one is coming getting tired of this crappers thats for sure but hey still here to talk shit and other things. sof
 
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